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July 27, 2009 11:22  by Dr. Lorne Brandes

Rarely has a medical story aroused more passionate debate on both sides of the Canadian/U.S. border.   I am referring, of course, to that of Shona Holmes, a 31-year-old Ontario woman who, last week, went public about her inability to obtain timely care within Canada’s public health care system. As a result, at her own expense, she sought urgent treatment at the Mayo Clinic for what she described as a life-threatening brain tumour.

Here's the CTV.ca story: Ontario woman slams universal health care in TV ads

However, it was how she chose to tell her story, more than the story itself, that grabbed the spotlight and left many Canadian tempers boiling.  In short, Ms. Holmes put herself front and centre in a TV ad sponsored by Patients United Now, a right-wing group opposing U.S. President Barack Obama’s drive to establish a government-run health care plan, similar to Canada’s, to cover almost 50 million American citizens who are currently uninsured.

“I survived a brain tumour, but if I’d relied on my government for health care, I’d be dead,” she solemnly declared to millions of U.S. viewers. Then, stating that “government runs health care in Canada,” where “care is delayed or denied” and where “many drugs and treatments are unavailable because government says that patients aren’t worth it,” an announcer warned that the horrors of a Canadian-style system would descend upon America unless the Obama plan was defeated.

In a subsequent CTV interview, Ms. Holmes described patient care in Ontario as “wonderful”, but pointed out that, in her case, having medical insurance did her no good. “What I didn’t have was access…this is what I’m concerned about, is that by providing everybody insurance, doesn’t mean that everybody gets access,” she explained.

While I disagree with Ms. Holmes’ political tactics and her generalization that the entire Canadian health care system is to blame for her lack of prompt treatment, I must both support her democratic right of free speech (however disagreeable I find her comments) and register my concern over certain information about her case that, if accurate, suggests she was not particularly well-served by her Canadian physician(s).

According to her case history, published on the Mayo Clinic’s website, after Shona developed, among other symptoms, headaches and deteriorating vision, her family doctor obtained an MRI scan that apparently showed a “brain tumour” near her pituitary gland. “But it would take months for her to get on the appointment calendar of a neurologist or endocrinologist in Canada,” the story continued.

The pituitary gland, which lies at the base of the brain, just above the bones of the nose, produces many hormones vital to life. The important thing to understand about pituitary tumours and cysts is that, regardless of the type (there are several), because the optic nerve from each eye courses in close proximity to the bony hollow where the pituitary sits, any tumour or swelling of the gland can put pressure on the delicate nerve fibres, resulting in their destruction and in loss of vision. In such cases, time is of the essence if blindness is to be averted or minimized.

Feeling that she could not wait “five or six months” to see a specialist, Shona contacted the Mayo Clinic branch in Scottsdale AZ where, after examination by a neurosurgeon, neurologist and endocrinologist, she was diagnosed with a rare type of pituitary gland swelling, called a “Rathke’s cleft cyst”.

After further tests showed that the size of Shona’s pituitary cyst had increased over “a short time” and that she had lost half the vision in her right eye and one-quarter in her left eye, Mayo Clinic neurosurgeon Dr. Neresh Patel recommended urgent surgery.  “I was concerned that the pressure on Shona’s nerves was causing her to become blind. We needed to remove the cyst to save her vision,” he was quoted as saying.

Following an additional several weeks of tests, Dr. Patel’s team then successfully removed the cyst through a small hole drilled in Shona’s nasal bones and sinuses. According to the doctors, her vision was fully restored after surgery. She went home four days later.

Casting aside political agendas (as well we should), if the Mayo Clinic account of her case is accurate, was it reasonable for Shona Holmes to seek immediate medical treatment south of the border rather than be forced to wait several months to see a Canadian specialist (as she claims)? I think it was.

Was she right to broadly condemn the Canadian medicare system for the fact that she was not given urgent access to a specialist? I think not.

More to the point, given her symptoms and the findings on the MRI scan, her Canadian doctor(s) should have recognized the potential urgency of her situation and aggressively advocated on her behalf for a specialist assessment as quickly as possible (meaning days or, at most, one or two weeks). Physician-to-physician calls are usually effective and speed up appointments considerably.

If, indeed, her health care providers failed in their obligation to her, is Shona justified in seeking a hearing with officials from the Ontario Health Insurance Plan to request compensation for some or all of her medically-necessary out-of-country expenses? I think she is.

Finally, while it was inaccurate for her to say that, had she relied on her government for health care she would be dead, she likely would have been correct to conclude that, had she relied on her government for health care, she could have permanently lost much, or all, of her vision!

Therein lies the seemingly indisputable truth in the Shona Holmes case, one that should remind “the system” about the need to expedite treatment of symptomatic pituitary tumours.
 
And only when examples like this one are well-learned and acted upon by medicine’s “gatekeepers”, will more  timely patient access to care in our publically-funded health care system be assured.

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